Wednesday, August 4, 2010

Profound apraxia at age 6

Nea turned 6 this summer. I've been putting off writing this post for quite awhile. Looks like the last update I gave on her speech disorder was in the spring.

Many times I have read "My apraxic child improved dramatically the year of kindergarten! Or at age 5!" It's a real trend. That's nice for those families, isn't it?

Things got really hairy for a few months. I struggled to understand her as her speech attempts became much longer and complicated. Some days I was exhausted by the time she went to bed. Those of you who have traveled to countries where you don't speak the language well know what that feels like.

But then a few things improved. One thing that helped more than you would think was that she started saying "A long time 'go". It doesn't seem like much, but CONTEXT is everything when you are trying to understand Nea. And knowing that we aren't talking about the here and now, or events of the day, helps so much.

I don't know. She has improved so much, but she has so far to go. If you ask her where she's going later today she says, "Eat-det Deah" (Easter Seals). Spongebob is Pon-Pon. If you heard her talk without seeing her you'd think she was maybe two years old. Talking on the phone with her is very difficult, as you can imagine.

Her handwriting is shaky. The pressure on the paper is very light. We spell things out and show her what letter to write and crawl through writing thank-you cards.

But then, the other day she told us that no boys were allowed in her room. And she does have a green belt in karate now. Maybe she'll be ok after all.


Anonymous said...

Are u kidding? She's Nea and she rocks!

Anonymous said...

I can't imagine the frustration you and Nea must feel at times. Flyn is better understood than your description of Nea and I still pull my hair out. I take my cues for patience from you B.


Kate said...

You are a great Mama, and she is a great kid, and I believe to my core that you will all be okay, even better than okay. But I can only imagine the frustration and, at least on your part, the anguish you experience every day. We love you all!